My appointment with the MS consultant was actually today, not tomorrow, thank god i checked my diary…
I’m going to be treated with the Lemtrada, the drug that sounds horrific.
It could stabilise me for up to 12 years though.
I will be able to try getting pregnant again in a couple of years.
I’ll likely start treatment in November/December as i have a trip to Seville booked early November.
The drug will essentially wipe out my immune system, ill need lots of post treatment meds, antibiotics and anti virals for example, for a fair while after the 5 day stint in hospital.
Ill be very fatigued during and for a few weeks after the treatment as it’ll break down my T and B cells, and all the chemicals from inside the cells will enter my blood stream
I will be able to have my 4 weekly blood tests locally which is a small bonus.
I can still have an alcoholic drink, but not too much before blood tests as it’ll mess with my enzyme levels.
Ill probably need another MRI before commencing treatment and have to keep my Dr up to date with any relapses.
So, there it is. Next 4 years of my life planned out, probably a rubbish Christmas, at risk of picking up everything due to a suppressed immune system. Excellent.
Been advised to avoid forums, won’t be an issue as i just want to deal with what comes, as it comes.
Going to be difficult, but when is life easy?
At least i can enjoy Cyprus and Seville and theres a plan in place, and i do like a plan!!!
Oh, and i need to stop vaping before the treatment!! #myonlyvice
Love, Little Miss PMA xxx