Day 1 of Lemtrada

Today i arrived at the hospital half an hour early. I didnt sleep a wink last night.

I was shown my bed, I’m in a ward of 4. I was last woman in. We have a screamer, a lovely lady who weeps a bit and the lady next to me is quite poorly and struggles to speak.

I’m the only 1 with MS. I’ve had bloods taken, swabs taken and pee’d in a cup.

Nothing of note happened until about 2pm.

I’ve had IV steroids (left a vile taste in my mouth), and I’m finally on the Lemtrada.

Its the stuff in that bright red bag. The stuff that can’t see light. The stuff that looks like it could kill ya. Yeah. Even the nurse described it as a toxic medication

I’m waiting on paracetamol and an antihistamine as ill spike a temperature and ill get an itchy rash.

My drip needs a new battery pack and i think my chest is feeling a bit tight.

I’ve been on the bloody thing less than 30mins and I’ve got a tight bloody chest.

What fun.

I’ve watched a lot of TV and I’m now watching The Meg.

Love, Little Miss PMA xxx

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