Tag: msblog

Day 3 and 4

Day 3 and 4

Days 3 and 4 were for the most part, boring.

I had a sleeping pill day 3 due to the screamer and the steroids. Still only managed minimal sleep though.

Got a bit of a surprise yesterday, i was moved to another ward. I can still hear the screamer, but with the help of another sleeping pill, i managed 8 hours sleep!!!

I also developed hives over night. My fellow MSer in my new ward, tells me it means its working

Im now struggling with my eyesight, they warned me some of the MS symptoms could come back

Its now Sunday. My eyesight came back within 2 hrs. I was exhausted but excited to get home. I left at 8pm

I slept all day Saturday. I was awake about 3 hours.

Today, the cat was sick on my bed so after an hour i managed to change the bed, put a wash on and have a shower, I’m now back on the (clean) bed awaiting Mr Me and Little T to come home from shopping.

I’m exhausted. This may be life for the next 2 weeks. Luckily Mr Me has time off over Christmas to help me out, i am on my own tomorrow but I’ve got backup if i need it

Love, Little Miss PMA xxx

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Day 2

Day 2

I think i fell asleep about 2am. The screamer chatted til 12.45am but then i had obs at 1am so couldn’t settle again.

I woke up a couple of times and have been wide awake since 5.10am.

Coupled with the 20 minutes of sleep Sunday, i think its safe to say I’m probably a bit tired.

I’m having to have regular obs as the Lemtrada can affect my heart rhythm (so far so good) and the steroids can affect my blood sugar. I tested at 15.5 and 14.9 yesterday. The higher one was just after i ate and the 2nd one 2 hours later, but i had had a packet of crisps and a chocolate bar inbetween as the steroids make me HUNGRY

The chest tightness from yesterday was relieved with my inhaler easily enough. I also got very achy like i did back in the early days of my symptoms and i felt a burning itchy sensation but no rash as yet.

Lets see what today’s dose will bring

To be continued…

The steroids are still vile as is the taste they leave

Very few other symptoms, other than insomnia…

Love, Little Miss PMA xxx

Day 1 of Lemtrada

Today i arrived at the hospital half an hour early. I didnt sleep a wink last night.

I was shown my bed, I’m in a ward of 4. I was last woman in. We have a screamer, a lovely lady who weeps a bit and the lady next to me is quite poorly and struggles to speak.

I’m the only 1 with MS. I’ve had bloods taken, swabs taken and pee’d in a cup.

Nothing of note happened until about 2pm.

I’ve had IV steroids (left a vile taste in my mouth), and I’m finally on the Lemtrada.

Its the stuff in that bright red bag. The stuff that can’t see light. The stuff that looks like it could kill ya. Yeah. Even the nurse described it as a toxic medication

I’m waiting on paracetamol and an antihistamine as ill spike a temperature and ill get an itchy rash.

My drip needs a new battery pack and i think my chest is feeling a bit tight.

I’ve been on the bloody thing less than 30mins and I’ve got a tight bloody chest.

What fun.

I’ve watched a lot of TV and I’m now watching The Meg.

Love, Little Miss PMA xxx